ORIGINAL PAPER
Sexual self-esteem and sexual needs of young adults with cerebral palsy
Submission date: 2014-08-01
Final revision date: 2014-10-24
Acceptance date: 2014-10-24
Online publication date: 2014-10-28
Publication date: 2014-10-28
Health Psychology Report 2014;2(4):247-255
KEYWORDS
TOPICS
ABSTRACT
Background
Sexuality is an important part of human existence, irrespective of race, religion or level of physical fitness. It can, however, be treated and exhibited by individuals in very different ways. The place of sexuality in a person’s life, and in the way it is materialised, is determined by a number of biopsychosocial factors. For some, the presence of these factors and their influence is not a matter of choice. They may arise as a consequence of the psychophysical condition of their organism. People with motor disabilities undoubtedly belong to this group.
Participants and procedure
The study was carried out in Poland on a group of 61 people with roughly equal proportions of men and women. Subject selection was non-random; every subject was diagnosed with cerebral palsy (CP) and was aged between
15 and 25. All of the subjects had normal levels of intelligence. Two methods were used in the study: Sexual Self-esteem Scale and Sexual Needs Scale.
Results
The results in terms of sexual self-esteem and sexual needs allowed two different subgroups of subjects to be distinguished (H – with high scores; L – with low scores). The analysis of significance levels of the differences in terms of sexual self-esteem and sexual needs between subgroups H and L confirmed the clear distinction between each of the subgroups’ clinical pictures (p < .001) in 20 out of 21 of the analysed aspects. Falling in love was the only matter that did not differentiate the subgroups.
Conclusions
There is a clear polarization of the results. Only 1/3 of the respondents had high sexual self-esteem and sexual needs. The remaining 2/3 reported having a rather low sexual self-esteem and low levels of needs with regards to their own sexuality. It needs to be stressed that CP-affected youth, similarly to their peers, may need support in discovering their sexuality and satisfying their sexual needs (2/3 of the respondents). The specifics of the range of support should take into account the aspects highlighted by the literature as associated with the causes of disability and contexts of psychosocial functioning of individuals with CP.
Sexuality is an important part of human existence, irrespective of race, religion or level of physical fitness. It can, however, be treated and exhibited by individuals in very different ways. The place of sexuality in a person’s life, and in the way it is materialised, is determined by a number of biopsychosocial factors. For some, the presence of these factors and their influence is not a matter of choice. They may arise as a consequence of the psychophysical condition of their organism. People with motor disabilities undoubtedly belong to this group.
Participants and procedure
The study was carried out in Poland on a group of 61 people with roughly equal proportions of men and women. Subject selection was non-random; every subject was diagnosed with cerebral palsy (CP) and was aged between
15 and 25. All of the subjects had normal levels of intelligence. Two methods were used in the study: Sexual Self-esteem Scale and Sexual Needs Scale.
Results
The results in terms of sexual self-esteem and sexual needs allowed two different subgroups of subjects to be distinguished (H – with high scores; L – with low scores). The analysis of significance levels of the differences in terms of sexual self-esteem and sexual needs between subgroups H and L confirmed the clear distinction between each of the subgroups’ clinical pictures (p < .001) in 20 out of 21 of the analysed aspects. Falling in love was the only matter that did not differentiate the subgroups.
Conclusions
There is a clear polarization of the results. Only 1/3 of the respondents had high sexual self-esteem and sexual needs. The remaining 2/3 reported having a rather low sexual self-esteem and low levels of needs with regards to their own sexuality. It needs to be stressed that CP-affected youth, similarly to their peers, may need support in discovering their sexuality and satisfying their sexual needs (2/3 of the respondents). The specifics of the range of support should take into account the aspects highlighted by the literature as associated with the causes of disability and contexts of psychosocial functioning of individuals with CP.
REFERENCES (40)
1.
Blum, R. W., Resnick, M. D., Nelson, R., & Germaine, A. (1991). Family and peer issues among adolescents with spina bifida and cerebral palsy. Pediatrics, 88, 280-285.
2.
Brunnberg, E., Bostrom, M. L., & Berglund, M. (2009). Sexuality of 15/16-years-old girls and boys with and without modest disabilities. Sexuality and Disability, 27, 139-153.
3.
Campbell, J. D., & Lavaalle L. F. (1993). Who I am? The role of self-concept confusion in understanding behavior of people with low self-esteem. In: R. F. Baumeister (ed.), Self-Esteem (pp. 3-20). New York: Plenum Press.
4.
Cho, S.-R., Park, E. S., Park, Ch. II, & Na, S.-il. (2004). Characterictics of psychosexual functioning in adults with cerebral palsy. Clinical Rehabilitation, 18, 423-429.
5.
Czusz, A., & Otrębski, W. (in press). Seksualność osób niepełnosprawnych umysłowo – wyzwanie dla metodologii badań i praktyki psychologicznej [Sexuality of intellectually disabled individuals – a challenge for research methodology and psychological practice]. In: E. Zasępa (ed.), Konteksty psychologii klinicznej [Contexts of clinical psychology]. Warsaw: Wydawnictwo APS.
6.
Długołęcka, A. (2007). Seksualność osób niepełnosprawnych fizycznie – zarys problemów [Sexuality of physically disabled individuals – an outline of problems]. In: A. Ostrowska (ed.), O seksualności osób niepełnosprawnych [About the sexuality of disabled individuals] (pp. 97-105). Warsaw: Wydawnictwo “GARMOND”.
7.
Donkervoort, M., Roebroeck, M., Wiegierink, D., Heijden-Maesssen, H., & Stam, H. (2007). Determinants of functioning of adolescents and young adults with cerebral palsy. Disability and Rehabilitation, 29, 456-463.
8.
Gapik, L. (2009). Funkcjonowanie seksualne w normie i patologii [Sexual functioning in normal and pathological cases]. In: Z. Izdebski (ed.), O człowieku i jego rozwoju nie tylko seksualnym: prace dedykowane profesorowi Andrzejowi Jaczewskiemu [About humans and their development, not just sexual: works dedicated to Professor Andrzej Jaczewski] (pp. 227-270). Zielona Góra: Oficyna Wydawnicza Uniwersytetu Zielonogórskiego.
9.
Gordon, P. A., Tschopp, M. K., & Feldman, D. (2004). Addressing issues of sexuality with adolescents with disabilities. Child and Adolescent Social Work Journal, 21, 513-527.
10.
Kijak, R. (2014). Seksualność człowieka z niepełnosprawnością intelektualną a rodzina [Sexuality of an intellectually disabled individual and the family]. Warszawa: Wydawnictwo Lekarskie PZWL.
11.
Kirenko, J., & Lew-Starowicz, Z. (1998). Psychospołeczne determinanty funkcjonowania seksualnego osób z uszkodzeniem rdzenia kręgowego [Psychosocial determinants of sexual functioning of individuals with spinal cord injury]. Lublin: Wydawnictwo UMCS.
12.
Kirenko, J., & Lew-Starowicz, Z. (2001). Seks po uszkodzeniu rdzenia kręgowego [Sex after spinal cord injury]. Lublin: Wydawnictwo UMCS.
13.
Kirenko, J. (2004). Psychospołeczne korelaty funkcjonowanie seksualnego osób niepełnosprawnych ruchowo [Psychosocial correlates of sexual functioning of individuals with motor disabilities]. In: M. Kościelska, & B. Aouila (eds.), Człowiek niepełnosprawny. Rodzina i praca [The disabled individual. Family and work] (pp. 122-134). Bydgoszcz: Wydawnictwo Akademii Bydgoskiej.
14.
Król, M. (2010). Mózgowe porażenie dziecięce [Cerebral Palsy]. Warsaw: Wydawnictwo Harmonia.
15.
Kurpiel, D. (2011). Psychospołeczne uwarunkowania funkcjonowania osób dorosłych z mózgowym porażeniem dziecięcym o różnym zakresie niepełnosprawności [Psychosocial determinants of functioning of adults with cerebral palsy and different levels of disability]. Cracow: Oficyna Wydawnicza Impuls.
16.
Lew-Starowicz, Z. (1999). Słownik encyklopedyczny. Miłość i seks [Encyclopaedic dictionary. Love and sex]. Wrocław: Wydawnictwo Europa.
17.
Lipczyński, A. (2010). Niektóre psychologiczne aspekty problemów seksualnych w związku z niepełnosprawnością [Some psychological aspects of sexual problems associated with disability]. Accessed on: 14.05.2013, source: http://www.psychologia.net.pl/....
18.
Markus, H. (1977). Self-schemata and processing information about self. Journal of Personality and Social Psychology, 35, 63-78.
20.
Moin, V., Duvdevany, I., & Mazor, D. (2009). Sexual identity, body image and life satisfaction among woman with and without physical disability. Sexuality and Disability, 27, 83-95.
21.
Murray, H. A. (1938). Explorations in personality. New York: Oxford University Press.
22.
Nosek, M. A., Howland, C., Rintala, D. H., Young, M. K., & Chanpong, G. F. (2001). National study of woman with physical disabilities: final report. Sexuality and Disability, 19, 5-38.
23.
Obuchowski, K. (1984). Psychologiczne problemy seksuologii [Psychological problems of sexology]. In: K. Imieliński (ed.), Seksuologia społeczna [Social sexology] (pp. 219-269). Warsaw: Wydawnictwo Naukowe PWN.
24.
Porębiak, M. I. (2005). Samoocena jawna i utajona: model dwuskładnikowy [Covert and overt self-esteem: a two-component model]. Nowiny Psychologiczne, 2, 93-105.
25.
Radomski, D. (2005). Czynniki utrudniające realizację życia erotycznego osób niepełnosprawnych fizycznie [Factors hindering the sexual life of people with physical disabilities]. Seksuologia Polska, 3, 8-12.
26.
Rintala, D. H., Howland, C. A., & Nosek, M. A. (1997). Dating issues for women with physical disabilities. Sexuality and Disability, 13, 219-241.
27.
Robacha, A. (2010). Metody badań seksuologicznych [Methods of sexology research]. In: Z. LewStarowicz, & V. Skrzypulec (eds.), Podstawy seksuologii (wyd. 1) [The basics of sexology, 1st ed.] (pp. 355-370). Warsaw: Wydawnictwo Lekarskie PZWL.
28.
Rosenbaum, P., Paneth, N., Levinton A., Goldstein M., Bax, M., Damiano, D. (2007). A report: the definition and classification of cerebral palsy. Developmental Medicine & Child Neurology. Supplement, 109, 8-14.
29.
Siek, S. (1993). Wybrane metody badania osobowości. Wydanie drugie, poprawione i rozszerzone [Selected methods of studying personality. Second edition, revised and expanded]. Warsaw: Wydawnictwo Akademii Teologii Katolickiej.
30.
Snell, W. E., & Papini, D. R. (1989). The sexuality scale an instrument to measure sexual-esteem, sexual-depression and sexual-preoccupation. The Journal of Sex Research, 26, 256-263.
31.
Stevenson, C. J., Pharoah, P. O., & Stevenson, R. (1997). Cerebral palsy – the transition from youth to adulthood. Developmental Medicine & Child Neurology, 39, 336-342.
32.
Szczerba, K. (2004). Seks od początku do spełnienia [Sex from the beginning to the climax]. Charaktery, 5, 37-39.
33.
Taleporos, G., & McCabe, M. P. (2005). The relationship between the severity and duration of physical disability and body esteem. Psychology of Health, 20, 637-650.
34.
Taleporos, G., Hons, B. A., Dip, G., McCabe, M. (2002). Development and validation of the physical disability sexual and body esteem scale. Sexuality and Disability, 20, 159-175.
35.
Wiegierink, D., Roebroeck, M., Bender, J., Stam, H., & Cohen-Kettenis, P. (2011). Sexuality of young adults with cerebral palsy: experienced limitation and needs. Sexuality and Disability, 29, 119-128.
36.
Wiegierink, D., Roebroeck, M. E., Donkevoort, M., Stam, H., & Cohen-Kettenis, P. T. (2006). Social and sexual relationships of adolescents and young adults with cerebral palsy: a review. Clinical Rehabilitation, 20, 1023-1031.
37.
Wiegierink, D., Roebroeck, M., Donkevoort, M., Cohen-Kettenis, P. T., & Stam, H. (2008). Social, intimate and sexual relationships of adolescents with cerebral palsy compared with able-bodied age-mates. Journal of Rehabilitation Medicine, 40, 112-118.
38.
Wiegierink, D., Roebroeck, M. E., van der Slot, W. M., Stam, H. J., & Cohen-Kettenis, P. T. (2010). Importance of peers and dating in the development of romantic relationships and sexual activity of young adults with cerebral palsy. Developmental Medicine & Child Neurology, 52, 576-582.
39.
Wiegierink, D., Stam, H. J., Ketelaar, M., Cohen-Kettenis, P. T., & Roebroeck, M. E. (2012). Personal and environmental factors contributing to participation in romantic relationships and sexual activity of young adult with cerebral palsy. Disability and Rehabilitation, 34, 1481-1487.
40.
Worley, G., Houlihan, C. M., Herman-Giddens, M. E., O’Donnel, M. E., Conaway, M., & Stallings, V. A. (2002). Secondary sexual characteristics in children with cerebral palsy and moderate to severe motor impairment: a cross-sectional survey. Pediatrics, 110, 897-902.
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